scared of what lies ahead

[Im2okru]

Going on 3/3/09 to start work up for transplant and was lQQking for some support since at home if i say anything I am bitching or complaining. But either way I am afraid and not to sure what to expect.
is there any body out there who could help.
blessings upon everyone and may the world always shine on us al.
Debra

[NICHOLAS MARINO]

Debra, I am 9mos post liver and I can tell you it will get much better. Last year at this time I was so sick. I am still learning to this day how sick I really was. Just stay strong emotionally and mentally. It is very important. Have good faith and you will be fine. It has not been that long for me and by the grace of God I am doing very well . I am grateful to all involved in this transplant experience. The transplant team was so supportive, just listen to them and Good Luck Nick Phila, PA

[Im2okru]

Nick,
thanks for the reply I have no choice the way I see it.
Either I go forward or just don't go at al. Everything is so new now and totay different an peope just dissapear as soon as they hear your sick found that out long ago but was not totally prepared to go this amost totally alone.
But thanks for the reply. and am so very glad to hear that our doing well. I will keep you in my prayers.
Belssings
Debra

[Jared Nickerson]

Debra,
This year will be my 25th year with my liver transplant. I was two years old when I received mine. I was a "test case" and if i survived I wasn't supposed to survive past the age of 10 I believe was the age they gave me. Well I'm 27 years old now, married and I have a beautiful young daughter. Although I do not remember the transplant or going to Pittsburgh to receive it, my mother has kept me informed on what happened. This has been a blessing for my life and I know it will be for yours. The Dr.'s are good, just go to your appointments and be a positive as possible through the whole time. It will make it tolerable. Good luck and keep on keeping on.

Jared

[Im2okru]

Thanks Jared,
I guess it is quite overwelming at times and scary but I don't see any other options that are viaible to me.
I am glad to hear that you are doing well blessed be ..
I think alot of the the confusion comes form the fact that I am so used to doing everything on my own now I can barey get around on my own and this makes me feel less a person at times and quite lonely as it seems that once people realize that you are really sick they just dissappear quick. I trust all will be fine and pray that this will not be a long drawn out process as I have heard the people can have to wait many years to become able to have a transplant if ever at all.
but most of all thanks for letting me know that I am not totlaly alone.
Belssings
debra

[Anna K. Moore]

I know what you are saying as my husband could not take my being so sick either and if it wasn't for a couple of good friends and neighbors, I would have never made it through my transplant and a divorce in 08! If I can help by talking and being a friend who will not dissappear, let me know. Anna

[sarah rosser]

WOW Anna you must be devastated that your husband was not willing to stick it out. I can't imagine how I would have survived if Mason was not here for support and my family and a couple of good friends stuck with me through it all. Now they are hanging in while I experience some trials of my own special recovery. If you ever want a friend to talk to just write me. I will be there.

[sarah rosser]

I was scared to death as well. I got the workup for my transplant done in Feb, 2009 about a week later I got a horrible infesction admitted to hospital Kidneys began to shut down had to do dialysis aggressively for 3 weeks and received my transplant 03/06/2009. I am yes, a miracle. I got my transplant the same day I received my letter to tell me I was on the Transplant list. My family was told I would only make it a few more days if I didn't get transplanted right away. I received my Liver the same night. Do everything your Dr. tells you, Pray alot and when family and friends say you are bitchy or emotional , politely say I am sorry but I am having a TOXIC MOMENT>
Good Luck
Sarah

[Ricky Zygmunt]

Hey Debra I had my transplant 18 years ago and am doing fine. I know how scary this time can be for someone. My faith in the ones who performed the operation and my family got me through it. I am here for you if you need someone to tell you it will be alright, beause it will. You have the right to be scared and if you need support or just some to talk to I'll be here for you. Your Pal and fellow transplanty Ricky

[Doug Shultz]

There is no trail that has overtaken you but such as is common to man, and God is faithful who will not all you to be tried beyond what you are able to endure, but with the tail also will make a way of escape in order that you may be able to endure it.


I was in the same boat, My work took me out of town, It took me 5 years to get me ready, 3 year Doc's work on my stomach, 1.5years work up. than got on the list 90 day i was called but no match, 5 month later it happen. the only thing that keep me going was my HIGHER POWER, and I work the whole time. Had alot of bad days. but now I have second chance of life. its been 11 month, GOD BLESS you hang in there.