Resources
| Patients |
|---|
| American Association of Kidney Patients |
| The American Association of Kidney Patients (AAKP) is a national non-profit organization founded by kidney patients for kidney patients. We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients. |
| American Diabetes Association (Alexandria,VA) |
| The American Diabetes Association provides diabetes research, information, and advocacy for diabetes patients and their families. |
| American Heart Association (Dallas,TX) |
| The American Heart Association is a national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke. |
| American Kidney Fund (Rockville,MD) |
| The American Kidney Fund is a national voluntary health organization whose primary goal is to relieve the financial burden associated with chronic kidney failure through patient aid programs. |
| American Liver Foundation (New York,NY) |
| The American Liver Foundation is a national, voluntary non-profit health agency dedicated to preventing, treating, and curing hepatitis and other liver diseases through research, education, and advocacy. |
| American Liver Foundation - Arizona Chapter (Phoenix,AZ) |
| The Arizona Chapter of the American Liver Foundation promotes liver health and liver disease prevention through education and advocacy in Arizona and New Mexico. |
| American Liver Society |
| The American Liver Society was founded by caregivers and patients to help other caregivers and patients and those that may become affected by a liver disease by providing them with useful information on topics of the liver. |
| Burkhead Foundation (Jefferson City,MO) |
| The Burkhead Foundation for Organ Transplants is a non-profit organization provides financial assistance to help transplant recipients and their families. The organization's grants help cover necessary expenses like temporary housing, travel, and other incidental expenses not covered by insurance companies. |
| Children's Health Information Network |
| Children's Liver Alliance |
| Pediatric liver organization dedicated to empowering the hearts and minds of children with liver disease, their families and the medical professionals who care for them. |
| Children's Liver Association for Support Services |
| Children's Liver Foundation (Ridgecrest,CA) |
| DaVita |
| DaVita provides dialysis services for those diagnosed with chronic kidney failure, a condition also known as end stage renal disease (ESRD). |
| DaVita Patient Citizens |
| DaVita Patient Citizens is an independent, nationwide, non-profit, patient-governed dialysis patient organization. We are dedicated to improving dialysis patients' quality of life by developing awareness of dialysis-related issues, advocating for dialysis and pre-dialysis patients, improving the partnership between patients and caregivers, and promoting favorable public policy. |
| Dreiling Medical Mangement |
| Dreiling provides comprehensive dialysis support services including; site selection and unit construction, human resources, financial management, clinic management, general business management, marketing and patient education. |
| Friends' Health Connection (FHC) |
| FHC is a non-profit 501(c)(3) organization that improves quality of life by enhancing physical, emotional and spiritual well-being. FHC links individuals with similar health challenges for mutual support and provides public access to exceptional health, wellness and motivational programs nationwide. |
| Georgia Transplant Foundation (GA) |
| The Georgia Transplant Foundation (GTF) is a nonprofit organization providing financial and educational support for organ transplant candidates, recipients, living donors and their families throughout the state of Georgia. GTF was founded in 1992 by Thomas Smith, a kidney recipient, and is funded through the generosity of foundations like the Carlos and Marguerite Mason Trust, corporations and individuals. Eighty-four percent of all funds raised supports Georgia transplant candidates, recipients, living donors and their families. |
| Health Hippo |
| Health Hippo is a collection of policy and regulatory materials related to health care. |
| Hepatitis C Caring Ambassadors Program |
| The mission and goals of the Hepatitis C Caring Ambassador Program (HCCAP) are to identify the best possible treatment options for chronic hepatitis C, educate people about their treatments options, motivate all those involved with hepatitis C to work together and help people living with hepatitis C to improve the quality of their lives. provide significant insights toward identifying cures for hepatitis C |
| Hepatitis C Support |
| Information and resources for those afflicted with or affected by Hepatitis C. |
| Life Cell |
| Life Cell strives to be a leader in the emerging field of regenerative medicine by delivering significant clinical benefit to our customers through innovative biologically based products for the repair and replacement of human tissue. |
| LifeLink Foundation |
| Lifesharing Community Organ & Tissue Donation |
| MedWeb |
| National Foundation for Transplants (Memphis,TN) |
| National Institute of Allergy and Infectious Diseases |
| The National Institute of Allergy and Infectious Diseases (NIAID) is a component of the National Institutes of Health (NIH). NIAID conducts and supports research that strives to understand, treat, and ultimately prevent the myriad infectious, immunologic, and allergic diseases that threaten hundreds of millions of people worldwide. |
| National Kidney Foundation (New York,NY) |
| NKF is a voluntary health organization that seeks to prevent kidney and urinary tract diseases, improve the health and well being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. |
| NephCure Foundation |
| The NephCure Foundation is the only organization solely committed to seeking a cause and cure for two potentially devastating kidney conditions, Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS). |
| NKF transAction Council |
| The transAction Council is part of the National Kidney Foundation (NKF), a major voluntary health organization that seeks to prevent kidney and urinary tract diseases, improve the health and well being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. |
| Northeastern Pennsylvania Transplant Support Group Inc. - NEPATSG (East Stroudsburg,PA) |
| An independent non-profit group committed to improving the quality of life for transplant candidates, recipients, their families and donor families. Offer support, education and awareness. |
| Oley Foundation (Albany,NY) |
| The Oley Foundation is a national, independent, non-profit organization that provides up-to-date information, outreach services, conference activities, and emotional support for g/j tube feeding and TPN/intravenous feeding consumers, their families, caregivers and professionals. |
| Organ Buddies (North Wales,PA) |
| Provide stuffed toys, ("Sidney the Kidney," "Bart the Heart" and "Oliver the Liver," and in development, "Pat the Pancreas" and "Leigh the Lung") as get well gifts of encouragement to support individuals of all ages through the ordeal of coping with organ transplantation. Also provide greeting cards to help those recipients who wish to communicate with their donor/donor families. |
| PCD Foundation |
| The PCD Foundation is dedicated to increasing awareness of inherited ciliary disorders and to providing education and advocacy for affected individuals and their caregivers. |
| PKD Foundation (Kansas City,MO) |
| The PKD Foundation is dedicated to finding the cause, improving clinical treatment, and discovering a cure for polycystic kidney disease (PKD). |
| Restoring Hope Transplant House (Middleton,WI) |
| Restoring Hope Transplant House is a "home away from home" for patients who are in the Madison area for organ, bone marrow or other transplants. |
| Second Wind Lung Transplant Association (Clearwater,FL) |
| Strives to improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years. |
| Second Wind of St. Louis, Missouri (St. Louis,MO) |
| The Second Wind Transplant Association of St. Louis is devoted to improving the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years. |
| Texas Liver Coalition |
| The Gift of a Lifetime |
| In this dramatic photo-documentary journey, experience the stories of patients whose hopes rise and fall with each passing day as they wait for organ transplants. Learn how families look beyond their grief in order to give life to others. |
| The LAM Foundation |
| The LAM Foundation provides support, education, and hope to women with Lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease. Our goals are to organize, marshal the forces of the scientific community, raise LAM from obscurity, and conquer it in a decade. |
| The Lung Connection (Littleton,CO) |
| TLC is an independent non-profit corporation designed by lung transplant recipients and their caregivers, both personal and professional. It is a comprehensive resource for housing and support for families going through the transplant process, both before and after surgery. |
| Tiger Fund |
| The Tiger Fund raises money for needy transplant families, develops support programs for the organ transplant community and compiles a forum for resources to increase the flow of information about liver transplantation to local communities. |
| TransAction Council |
| Ukidney |
| UKidney uses the latest web technology to deliver the best content in the field of nephrology education. |
| UltraCare-Dialysis.com |
| UltraCare-Dialysis.com is Fresenius Medical Care’s kidney disease, dialysis and lifestyle resource providing information on home and in-center hemodialysis, peritoneal dialysis, nocturnal dialysis kidney friendly diet, nutrition, recipes and travel. |
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